Meet Trinity Teeters, an exceptional teenager from Chairman Fred Upton’s district in Berrien Springs, Michigan, who was born with an ultra rare disease. Her syndrome is called Tibial aplasia, lower extremity mirror image polydactyly, brachyphalangy, craniofacial dysmorphism and genital hypoplasia: further delineation and mutational analysis.
Before she was born, doctors recommended to Trinity’s parents Hope and Jason that the pregnancy should be terminated, stating that their unborn daughter “would not be compatible with life."
Trinity’s joints do not work in her hands and wrists, and also has endured sight and hearing problems. She has also had both legs amputated due to her condition. But despite her physical challenges, Trinity has excelled. She’s a budding artist, was an honor roll student her freshman year at Berrien Springs High School, is a member of the choir, and looks forward to studying biology and immunogenetics in college.
And according to Trinity’s dad, she’s not one for complaining. He tells WNDU NBC 16, “You can either be bummed out about it or you can choose to accept it and deal with it, and that’s exactly what Trinity had done. Very proud, very proud parents."
Chairman Upton commented, “Trinity’s extraordinary spirit in the face adversity is incredibly inspiring. She’s a fighter, and we are fighting for her. We need #CuresNow to help kids like Trinity."
Watch Trinity’s inspiring story HERE
