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Andrew N. Ferguson | Commissioner | Federal Trade Commission website

FTC issues refunds after settling with genetic testing firm over data security

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The Federal Trade Commission (FTC) is issuing refunds to over 2,400 consumers following a settlement with 1Health.io, previously known as Vitagene. The settlement addresses allegations that the genetic testing company failed to secure sensitive genetic and health data, misled consumers about their ability to delete their data, and retroactively changed its privacy policy.

The FTC’s June 2023 complaint alleged that 1Health.io's security shortcomings exposed consumers' sensitive data despite the company's claims of exceeding industry-standard security practices. The complaint also stated that the company assured consumers they could delete their personal information at any time. However, due to inadequate data inventory maintenance, this promise could not always be fulfilled. Additionally, in 2020, the company reportedly expanded the types of third parties with whom it could share health and genetic data without notifying or obtaining consent from consumers.

As part of the settlement, the FTC is distributing more than $49,500 to 2,432 consumers. Most recipients will receive a check by mail and are advised to cash it within 90 days. Eligible consumers without an address on file will receive a PayPal payment which must be redeemed within 30 days.

Consumers with questions about their payments should contact Simpluris at 1-888-427-9238 or visit the FTC website for frequently asked questions about the refund process. The FTC emphasizes that it never requires individuals to pay money or provide account information to receive a refund.

The Commission's interactive dashboards offer a state-by-state breakdown of refunds in FTC cases. In 2023 alone, FTC actions resulted in $324 million in refunds to consumers nationwide.

The Federal Trade Commission aims to promote competition while protecting and educating consumers. It does not demand money, make threats, instruct individuals to transfer money, or promise prizes. For more information on consumer topics or to report fraud and scams, visit consumer.ftc.gov or ReportFraud.ftc.gov. Stay updated by following the FTC on social media and subscribing to consumer alerts and business blogs.

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